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Welcome to Crisis Control

Mind | Body | Cell

Living with Sickle Cell Disorder (SCD) comes with its challenges, but no one should have to face them alone. Crisis Control is here to support, inform, and connect individuals affected by SCD whether you're a patient, parent, or caregiver.

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Around 17,500

people in the UK live with Sickle Cell Disorder. (Sickle Cell Society UK)

Around 90,000 

Children are born with a gene for sickle cell or other uncommon haemoglobin. (NHS)

Around 1 in 79

newborns in the UK carries the sickle cell trait. (Sickle Cell Society)​

Around 250

new sickle cell cases are diagnosed in England every year. (NHS)

Who We Are

We are a growing community built on understanding and shared experiences. SCD affects more than just the body it impacts mental well-being, daily life, and the people around us. That’s why we focus on the whole picture:

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Mental health support, self-care tips, and coping strategies.

Practical advice for managing pain, fatigue, and overall well-being.

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Information on SCD and ways to stay ahead of health challenges.

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Why Crisis Control?

Sickle Cell is more than just a condition it’s a daily reality. Whether you're looking for useful resources, real-life stories, or just a space where people “get it”, we’re here for you. This is just the beginning of what we hope will become a trusted hub for the SCD community, To Help You Support Your Mind, Body, and Cell.

If you want to support us Donate or Join the con

We’re building something special, and we'd love for you to be a part of it. Your voice matters. Your experience matters. Let’s navigate this journey together.

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