Around 17,500
people in the UK live with Sickle Cell Disorder. (Sickle Cell Society UK)
Around 90,000
Children are born with a gene for sickle cell or other uncommon haemoglobin. (NHS)
Around 1 in 79
newborns in the UK carries the sickle cell trait. (Sickle Cell Society)
Around 250
new sickle cell cases are diagnosed in England every year. (NHS)
Who We Are
We are a growing community built on understanding and shared experiences. SCD affects more than just the body it impacts mental well-being, daily life, and the people around us. That’s why we focus on the whole picture:
Why Crisis Control?
Sickle Cell is more than just a condition it’s a daily reality. Whether you're looking for useful resources, real-life stories, or just a space where people “get it”, we’re here for you. This is just the beginning of what we hope will become a trusted hub for the SCD community, To Help You Support Your Mind, Body, and Cell.
We’re building something special, and we'd love for you to be a part of it. Your voice matters. Your experience matters. Let’s navigate this journey together.